New App Helps Patients Fill Key Gap in Lupus Treatment

Living with lupus is both challenging and unpredictable, making good communication between physicians and patients vital to managing care.

Recently, Hospital for Special Surgery (HSS), announced the launch of LupusMinder, a new mobile app designed to help anyone with lupus track medications, daily symptoms and appointments.

“People affected by chronic conditions can become overwhelmed by changes in their medications or day to day variations in their symptoms,” said Mary K. Crow, MD, physician-in-chief at HSS. “We wanted to create a comprehensive app to record all pertinent information, lowering the stress associated with managing lupus. By inputting daily symptoms, the app also allows us to chart progress over a short- and long-term period.”

Lupus, or systemic lupus erythematosus (SLE), is a chronic autoimmune disorder in which the immune system attacks one’s own cells instead of protecting the body.

So how does the app work?

The app enables a patient to easily access and review their history with their provider during valuable appointment time. Users can take pictures of their physical symptoms to show their physician at an upcoming appointment, as well as print and save their daily logs as PDF files.

“As lupus symptoms can fluctuate each day, it can be challenging for us to assess overall disease activity if we only see what occurs at the moment the patient is in our office,” said HSS rheumatologist Jane E. Salmon, MD. “When a patient presents a graph of his or her level of pain over a few days, or a photo of a recent rash or swollen joint, it helps me develop an appropriate treatment plan.”

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